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Everyone has had different experiences along this journey with cancer and there are just as many opinions.
It’s extremely important to talk to your doctor as soon as you start having any side effects, including hot flashes, joint pain, blood clots, trouble sleeping, fatigue, or difficulty concentrating. I don't seem to get cold anymore which is fine at this time of year! Aromatase inhibitors may cause muscle and joint aches and pains. To be honest, I would have made the same decision you did, if I were in the same situation as you. So we sound like we are in similar positions with our treatment. I've been on Tamoxifen for 6 months and experiencing many of the side effects. I would have thought that having the bilateral mastectomy would be enough to prevent any further chance of breast cancer. It worries me, tbh. It must be a very painful memory and if you are likely to be prone to them too then that is another reason to give the treatment a miss. I posted on here yesterday that I had my results from my bilateral mastectomy. Aromatase inhibitors aren’t commonly used to reduce recurrence risk in premenopausal women. Read the abstract of There are several types of hormonal therapy medicines. I've been reading your posts and blog over the last few weeks and you come across as an intelligent and sensible person who does the research and weighs up the pros and cons before making any decisions and I think you have made the right one for you.Although I had clear margins and lymph nodes I feel the LCIS is a ticking time bomb and wonder if I should have pushed for a mastectomy.
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- and so we can only give our opinions based on what little we know of one another. You have been powerful and proactive, and have made a decision about your treatment. A company limited by guarantee, registered in England and Wales company number 2400969. Less common but more severe side effects of aromatase inhibitors are heart problems, osteoporosis, and broken bones. My understanding of Tamoxifen is that since 1995, it has been listed as a carcinogenic substance on the list of chemicals that have been proven to cause cancer.Sorry this has been a bit of a ramble and thanks if you got to the end :-), but I was awake at 4am thinking about it.I am sorry. I think if I was in the same position as you I would have made the same decision that you have. If you’ve been diagnosed with hormone-receptor-positive breast cancer and will be taking hormonal therapy after surgery and other treatments, it’s very important that you take the medicine for as long as it’s prescribed and at the dose at which it is prescribed. It's a mathematical tool, which spits out percentages from averages. totally agree with you, we have to make our own minds up what we want to see and yes, it is across the board and not totally based on you as an individual as i said in my post. Tamoxifen is an effective and most appropriate agent for some women with breast cancer. “Tamoxifen, for example, has far less risks than chemotherapy. (My risk factors added up to much more than yours, and therefore I dutifully chug down my Tamoxifen every morning.) It's good to have some healthy discussion about it all. I don't see the oncologist until the new year so I will be reading up on Tamoxifen and be ready with all my questions.Hey there Dawn, 4am is a horrible time, isn't it? As I said in my post yesterday the PREDICT tool which I went through with my surgeon yesterday showed that I would only get a 1% benefit if I took Tamoxifen and this doesn’t take into account my lifestyle etc - this is just across the board for my age and grade of cancer etc. If your cancer is not estrogen-receptor positive, tamoxifen probably will not be effective against it.
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